We are pleased to welcome you to share in the life of our organization whose mission is to support the cause of neurofibromatosis.
Neurofibromatosis is a genetic disorder which affects the skin and the nervous and skeletal systems. It may be inherited from either parent in 50% of cases or result from a spontaneous genetic mutation.
This video traces the lives of people living
with this disorder.
their daily reality,
and their experiences.