Boards of directors 2016

We are here to provide information and bring people out of their isolation.

We are pleased to welcome you to share in the life of our organization whose mission is to support the cause of neurofibromatosis.

What is neurofibromatosis ?

Neurofibromatosis is a genetic disorder which affects the skin and the nervous and skeletal systems. It may be inherited from either parent in 50% of cases or result from a spontaneous genetic mutation.

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Joint meeting on May 11 at Montreal
Emerging from the shadows

This video traces the lives of people living
with this disorder.

their daily reality,
their joys,
their disappointments
and their experiences.


To order "Emerging from the shadows"